The CRICCS Consortium is calling upon population-based cancer registries around the world to collaborate in this ambitious project by contributing their data and expertise.
In July 2021, more than 300 cancer registries across the globe were invited to participate in the project by providing their data and expertise. The goal of the CRICCS study is to collectively advance the knowledge of cancer risk in childhood cancer survivors, ultimately leading to a reduction of this risk.
Full details of the call for data, including a preliminary questionnaire to help assess the types and scope of data available in the different registries, are available upon request from ccs@iarc.who.int.
The Call for Data is still open.
At the first CRICCS Consortium meeting, which was held remotely on 1-2 December 2020, the planned course of action was discussed in detail. The Consortium members discussed the call for data, practicalities of data acquisition, methodological aspects, and the communication strategy.
The second Consortium meeting was held on 30 March 2021. Progress was reported, and discussions focused on the call for data and the methodology for estimating the prevalence of childhood cancer survivors. Presentation of the CRICCS project at the SIOP Europe Annual Meeting 2021 was planned.
The third Consortium meeting was held on 24 and 30 November 2021. Progress was reported on data collection as well as the development of methodology for estimates of prevalence of childhood cancer survivors. Preliminary results on the risk of second primary neoplasms in survivors were also presented. Communication activities were summarized, and publication plans were discussed. The participants commended the good progress that has been made one year into the project.
To facilitate participation in the CRICCS project, online information sessions were held in October 2021. The CRICCS Core Team described data requirements and expected outputs and, most importantly, provided participants with an opportunity to ask questions about their contribution to this project.
A collection of resources was gathered from the sessions, including presentations and answers to most asked questions. They are available for consultation. Please contact ccs@iarc.who.int for more information.